Showing posts with label cancer. Show all posts
Showing posts with label cancer. Show all posts

04 March 2017

Nothing > Love

This morning I learned that one of my favorite writers, Amy Krouse Rosenthal, is dying – before long – of ovarian cancer.  I had known that she was sick for about the past month, but I didn’t realize that her situation was so grim.  Gratefully, in this day and age, a cancer diagnosis isn’t a certain death, but unfortunately there are still many types of cancer that are not as treatable as others.  By now, you've probably heard about her from the article in the New York Times, where she essentially writes a dating ad for her soon-to-be-widowed husband.  It is one of the loveliest love letters I've ever read.

AKR, as I think of this writer, has written both children’s books and several memoirs and books for adults.  Her children’s books are sweet, often with a theme of inclusion or permission to be your true self.  I’ve thoroughly enjoyed her memoirs.  The first one I came across was An Encyclopedia of an Ordinary Life.  In this book, she chronicles her life, encyclopedia-style.  AKR is a few years younger than me, so she grew up in the age of encyclopedias.  This book contains short smatterings of her thoughts on various topics, alphabetized and cross-referenced.  There was a set of Collier’s Encyclopedias in my house that my parents probably spent far too much on and which I loved.  They contained the entirety of the known universe.  Anything I wanted to know more about lurked within those heavy tomes.  I can still recall the weight of the volume on my cross-legged lap, the cracking sound of the spines as they were opened, revealing glossy pages and sometimes mystifying black and white photos.  AKR’s uncanny ability to connect interesting commonalities of words or ideas is equal parts amusing, poignant, and oh, so true.  I identified with her ideas and experiences on such a deep level that I often found myself nodding my head in agreement, wondering how she knew me so well.

Through her works, I connected to a couple of friends.  One of those was a college friend, Tara, who was lucky enough to host AKR at her school in Thailand where she was working as a librarian a few years ago.  We both loved AKR’s writing and Tara was sweet enough to send me temporary tattoos from the swag AKR brought to her school.  Given AKR’s latest article, the message is especially pointed.



This fall, I read her latest memoir, Textbook Amy KR.  It’s an easy read with lots of negative space.  For example, here's a page  that struck such a chord I took a photo of it and posted it on my Instagram:



The book also provides many opportunities for readers to interact with one another and AKR.  Readers could share images of rainbows, or enter a contest for AKR to send one lucky participant a pecan pie. 

AKR sees the world through a charmed lens, and it is heartbreaking to me to learn that her diagnosis is so grim.  Her symbol is a yellow umbrella – something bright and sunny on a grey day.  I’ll sport one of her temporary tattoos this weekend to remind me to rise above that which is petty and draining, and to hug and smile and live a little more deliberately.  And to remember always one of her best observations:  Nothing > Love.


25 January 2014

Shadow Puppets

I’m up before dawn again, dressing snugly for my morning run while talking down the shadow puppets in my mind.  Once outside, the season’s coldest day so far bites through my layers.  I pull on my gloves, expecting that I’ll warm up as I go.  It’s in the twenties at my house high on the hill, and down below it will surely be colder, as the heavy chilled air sinks to the low pockets of the neighborhood during the night.  I’m running alone today.  My running partner and fellow teacher, Roberta, isn’t feeling well, and although I’m afraid, I’m going anyway.  We’ve been running together for eight months now, but have been friends since before we were mothers, which is to say forever.   
            There is something sacred in the predawn hour.  Back when I was a new mother, watching the sun rise as each of my daughters sleepily nursed, I was aware of the sanctity of this time, when it seemed I was the only one awake in my time zone.  It is perhaps the quietest moment of the day, punctuated only occasionally by a vehicle or a dog’s bark.  And as we run in the darkness on a typical morning, we need only listen to the cadence of our steps against the asphalt, and focus no further than the scope of our headlamps.  We talk and can imagine we solve all the world’s problems while we run, or none at all.  It’s a sharp contrast to the rest of the day with our families and in our classrooms, where we attend to so much, proactively and reactively, with our attention scattered in so many directions. 
            There are dangers in running in the darkness, no doubt.  Our neighborhood borders national forest.  Deer and coyote are common to the area, more rarely bobcat and mountain lion.  Human threats lurk as well, like the newspaper delivery person, whose car sometimes races through our streets.  What frightens me most, though, is an encounter with a skunk.  Every morning I hope that my fear of this creature continues to be irrational and unfounded.  But in spite of these potential dangers, I am out here alone this morning.  There is little more gratifying than facing down a fear and realizing it was just a shadow puppet.  The fears that spend the most time lurking in our minds, though, are rarely the ones which actually show up to cast very real and scary shadows upon our lives.   
            Fear can’t be seen because it exists only in the mind, but it holds such sway over us.  It seems silly to me that I spend so much time worrying about encountering an animal in the darkness, and so little considering something truly dreadful.  It had really never occurred to me that I should fear, say, cancer.  That was before I was diagnosed with breast cancer this past winter.  It was a completely improbable diagnosis, at least in my eyes, because I just couldn’t fathom that it was going to happen to me.  I was young enough and had no family history to place me in any category of risk, other than being a female.  I figured breast cancer mostly struck large breasted, older women.  Or at least women who had been blessed with lovely cleavage.  I was in neither of those groups, sadly or not.  And by the time my doctor shared with me that I had not only one diagnosis of breast cancer, but one in each breast, I’d already made the choice to have a bilateral mastectomy.  It was by far the toughest choice I’ve ever had to make.
            The diagnosis and its ramifications were further compounded by the fact that my two daughters were on the cusps of puberty, respectively, and my awareness that my disease placed them in an entirely new category medically.  During those sleepless weeks before my surgery, I grappled with how cancer would change their lives as much as how it was affecting mine.  Throughout that surreal phase, I did what I needed to do to make it through each protracted day, in spite of the dread that each night brought.  But regardless of how eternal each night seemed, somehow day would finally dawn, and with it, light and potential.  I wasn’t running then, as my days were consumed by trips to doctors’ offices and tests in the Phoenix area, preparing for the extended absence from my classroom, and trying to keep life as normal as possible for my family.  Somehow, though, I made it through.  Each dawn, though, brought with it the relief that I was one day closer to surgery, which meant I was one day closer to recovery, and in turn, a return to whatever normal might mean post-cancer.
            When Roberta asked if I was well enough to begin running again about a month after my surgery, and if I’d want to run with her in the early morning, I was hesitant at first.  We’d run together occasionally before, but not for a couple years.  I’d had a boring yet stable relationship with the treadmill in my basement that I figured I’d go back to, eventually, if I could muster enough inspiration to create a fun, new playlist for my iPod.  I did not want to wake up that early.  I thought it was folly to go out so early that it could still be considered night.  I truly feared what we might encounter out there in the darkness - I still do, in fact.  But I relished the opportunity to renew our friendship by regularly spending time together, and so I said yes.  And our routine has yielded far more mental and emotional wellness than I’d ever have imagined. And thus far, the only creatures we’ve encountered have been bunnies nibbling in the yards and a very ancient yellow Labrador.
            As I step out into the cold darkness alone this morning, I sense the world opening wide before me.  The black sky is studded with stars and the silver moon hangs low on the western horizon.  I run, warming up on the easy downhill.  Most houses are completely dark, and it is silent except for the sound of my feet and the whisper of my jacket rubbing against itself.  I run, thinking of the day ahead and how I might improve upon yesterday.  I run, turning words and phrases like wood on a lathe.  I run, reflecting on the many lessons cancer taught me, the greatest of these is love, as they say.  I run, practicing gratitude for the ability to run, no matter how slow I am, even if it is difficult some mornings, and even if it hurts sometimes.  I run, even if I could be home in a warm bed instead.  I run, not so much for the exercise, but because I know that taking this time for myself makes me a more bearable person for the rest of the day. 
            By the time I make it back up the hill, I am warm and ready for the challenges of the day.  Who knows what dangers lurk beyond the bend?  We cannot know.  But we can choose to keep moving forward regardless, because we also can’t know what we might miss by helplessly watching fear casting its shadows.  On this particular morning, as my breathing slows back to normal, I am more than rewarded for waking so early and going out in spite of my misgivings.  The moon has set in the west, and from its position below the horizon, it illuminates the clouds above, which glow with its cold white light.  In the east, the sun has barely risen, but its warm yellow radiance has cast those clouds golden pink.  In this moment, I feel equidistant from the sun and moon, the center of my own universe spinning effortlessly around all I love, gravity cradling me close to this earth.

08 March 2013

Linguistic Comforts

Last year for my birthday, I received a gift card for a bookstore.  After spending it in my mind a dozen or more times, I finally settled on Volume One of New and Selected Poems by Mary Oliver.  I did this in spite of knowing that it was somewhat ludicrous to imagine even a reader like myself sitting down to read more than 250 pages of poetry.  I mean, who does that?  And so, recognizing the limits of time in the crazy-busy life of a full-time mother-wife-teacher-writer, I hatched a plan to read a poem a day.  Just one.  Each day.

Sometime between Christmas and New Year’s I started my daily poetry dose.  I flip to a random page, usually in the morning before the rest of the house is awake.  It’s just me and dear Mary, a fellow lover of words and nature.  Each poem, while chosen par hasard, speaks to me, symbolic somehow of each day’s specific challenges.  And that was before my challenges included words like carcinoma and recovery, choices like surgery or radiation, and an intimate knowledge of JP drains.

How fitting, on the day after my surgery, to read:

stroke by
stroke my
body remembers that life and cries for
the lost parts of itself -

Or to find this lesson as I was contemplating mortality - my own, specifically - and trying to cradle it in my palms without quaking:

To live in this world

you must be able
to do three things:
to love what is mortal;
to hold it

against your bones knowing
your own life depends on it;
and when the time comes to let it go,
to let it go.

It isn’t surprising to me that words should and do provide comfort - we’re wired for this a linguistic and social species.  But what has been a blessing, each and every day, is to find meaning and connection and universality in each poem.  What a gift it has been to myself and my own sanity to feel the imprint of this voice upon my very soul.

 

 

24 February 2013

The Whole Sky

We often mark our time here on earth with the words before and after:
before I met you...
after we were married...
after graduation...
before we had children...
before he died...
2013 did not begin in an auspicious way for me.  In fact, on the last day of 2012 I received news that swirled me up into an eddy of doctors’ visits and medical tests and procedures from which I am still quite literally recovering.

Just over a month ago I was diagnosed with a very early stage breast cancer in my right breast.  Something that no one mentioned about being diagnosed with cancer is that the first suspicion is just the beginning.  From there, you’ll be asked to run a gamut of tests that confirm or deny other suspicions.  You will be given lots or little information, and then be asked to make huge decisions.  Three weeks after my first cancer diagnosis, it was revealed that the same cancer was also lurking in my other breast, simply missed by at least two other doctors.  And on February 15th, my mother’s 76th birthday, I underwent bilateral mastectomy.  All of the cancer was removed and the sentinel lymph nodes of both sides were also free of cancer.  I am well on the road to recovery, but it will be a long process.

And so now I find that I can demarcate my life as before cancer and so very gratefully as after cancer.  There are certain aspects of my life which are irrevocably changed, altered permanently.  But not all of this change is bad.

Before, I saw the world as full of potential, for adventure, for travel, for knowledge.  But it’s not until you hear certain words spoken in reference to yourself or a loved one, words like cancer, that you really feel the presence of other potentials.  Abruptly, possibilities like pain, suffering, and death - your own and that of your loved ones - loom darkly on your own horizon.

Hearing a doctor say that you have cancer is like being thrust under water.  Quite suddenly, there is no longer enough air in the room.  And the world, as you once viewed it, no longer has the clarity it had before.  The word cancer attaches itself to nearly every thought, obscuring most of them.  I can only speak of my own experience, my own diagnoses, which are highly curable.  I can only imagine that these feelings are multiplied exponentially if your prognosis is more grave than mine.

If this can happen to me, my wild brain laments during the long dark nights, then what else is possible?  What horrors are equally likely to be visited upon my husband, my daughters, my loved ones?  These potential dangers ambushed me at night.  I’ve known for quite some time that I’ve lived a life relatively free from loss and tragedy.  I know that I was grateful for that.  It was as if, with my diagnoses, for the first time, my eyes were open, able to see things that have always been there.  These potential dangers lurk under shadow but are keenly visible with my new-found vision.  There is no way to unsee this.

But something else became discernible as well.  I truly never realized how much I am loved.  I never consciously felt love swaddling me, as a friend put it she wanted me to be cocooned with love.  I had never sensed love’s full capacity to buoy me up in spite of feeling tethered to a heavy darkness.  A string I could follow to lead myself out of the cave.

So many people have expressed admiration for my courage, remarking on how brave I am.  I don’t really know what they mean by that.  I once defined courage as being aware of the dangers that exist and carrying on anyway.  I still believe that.  But the instinct for self-preservation is pretty high, whether you are on a risky mission in Afghanistan or making decisions about cancer treatment.  I only did what I had to do in order to ensure that my life could go on pretty much as it had before.  Anyone would find the same reserve of intentions if and when you are faced with challenges.  It is not until you look that challenge in the eye, though, that you will know how strong you are.

My brother John, a cancer survivor himself who is married to a cancer survivor as well, said to me early on that cancer would test me in ways I couldn’t imagine.  This has been absolutely true.  He also said that he wouldn’t give his cancer back because it made him a better person.  I know exactly what he means.  My entire world has come sharply into focus since I resurfaced from my initial plunge underwater.  Some things that seemed important have faded to irrelevance.  Others, which seemed intangible are now palpable.  The greatest of these, of course, is love.  Hafiz, the 14th Century mystic said,

Even
after
all this time
the sun never
says to the earth,
"You owe me."

Look
what happens
with a love like that.

It lights the
whole
sky.

Please know that your kindnesses through deeds and words do have an impact.  Do not be afraid to love, for it is the only way to extinguish darkness. 

 

 

05 December 2010

Ghosts of Christmas Past

As I work on the Christmas tree, assembling the parts and fluffing the branches, my daughters open the box containing the ornaments. I think it was last year that I deemed them responsible enough for this task: unwrapping each ornament from its tissue-paper protection and laying it on a tray. When all the ornaments are ready to hang, the tree will be ready for them, too.

I listen as my daughters talk, delighting in the memories they uncover.

“This is the ornament I made in first grade.”

“Look, on the back of this one I wrote my name backwards.”

“We’d better hang this one high – it’s so very fragile.”

“Another bell. Let’s hang those low so that when Lucie runs under the tree, she’ll make the bells jingle.”

The girls continue to talk as Lucie, our cat, darts under the tree branches and then back out, again and again. The tree renews her joy, too. The pile of tissue paper grows with each ornament unwrapped. More and more ornaments line up on the trays, waiting to be hung on the tree.

Dan comes over to help with the branches, and silently we work together. I’m not sure if he’s listening, too, or if he can sense the ghosts of Christmas past entering the house and my thoughts, layered like the discarded tissue paper on the floor.

I think, astonished, at how these girls have grown, and how we share these memories now and forever. At what point did they, too, become stewards of our memories?

I think of last December, when I was fretting through multiple mammograms and ultrasounds, and then a biopsy, until just days before Christmas, I received the news that I did not have breast cancer.

I think of the Christmas when Madeleine was nine months old and how I was determined, beyond reason, that everything be just perfect. I think of Arden’s first Christmas and how I’d completely forgotten that she’d be needing a stocking to hang, too, only remembering after hanging just three on the mantle. I think of the dichotomy of my expectations between those two years.

I think of the years before Dan and I had children, when we celebrated both in Prescott and in the Valley, having two Christmas meals in the same day with each of our extended families. I think of how both of my maternal grandparents, the only grandparents I ever knew, died in December. I think of the first Christmas when my brother Colin was away, and how my mother cried after talking with him on the phone and learning that he was spending the day alone. I think of the challenges of balancing extended family expectations with new traditions, and the joys of family gatherings from my childhood and now.

And always, always in December, I think of the baby I lost, a mere week before Christmas, and how through that loss I eventually gained the two gems of daughters I am now blessed with, and how, if things would have turned out differently with that pregnancy, Madeleine and Arden would not be. And I cannot imagine how my life could be without the two of them, and how they help to shape me as much as I help to shape them. The gratitude I feel to the forces that brought the four of us together and bound us as a family is without measure. And while there were moments when I wasn’t sure I would – or even wanted to – survive the sorrow I felt during that distant Christmas, I know now that it was a part of the journey, and if I hadn’t endured that, I wouldn’t be here, listening to these girls, now.

Another ornament is unwrapped, a silly reindeer with googly eyes and a sequin placed on the side of its red nose. Arden says she loves the “twinkle” on its nose, and Madeleine points out that Great Grandma Bair made that ornament. I think of all who aren’t here this Christmas, those we won’t see, but whose presence will be felt around this tree where we gather as a family.

And all the while, I am listening, watching. Watching, and trying not to worry about the ghosts of Christmas future even as I count silently on my fingers how many more years we’ll hopefully all be together in early December, before my girls leave home and create new traditions of their own. Watching, and feeling nostalgic – already – for this holiday season. Watching, and marveling at the comfort of these ghosts of Christmas past. With each new memory, these ghosts rise up, like a mist that conceals the ordinary as it reveals the constant unpredictability that is life. And I can see that these ghosts are not burdened with chains, but are light as snowflakes, and that they alight everywhere, especially on our hearts.